Go deep into her eyes and see the Emunah she inspires on Chanukah! Go deeper and see the incredible seriousness of her critically non-working body.
WATCH: Yaakov Shwekey sings to medically fragile Maayan for Bat Mitzvah
$18 a month needed NOW to HELP save Maayan's life
Maayan is an incredible neshama stuck in a body afflicted with a rare disease (Batten's), yet inspiring thousands of people around the world to do acts of kindness, prayer, and good deeds - every day!
Just after Maayan's tracheostomy surgery, we began this campaign for her round-the-clock care. Thank G-d many people signed up to help, but sadly we have not yet met our goal to meet the costs of her full-time medical support.
"As we sit at home in the warmth of our Chanukah menorahs with our families, let's remember those who need life-saving miracles far greater than we do. In that zechus, may you and your family merit chesed and miracles always."
Maayan was born a healthy and adorable girl, but at age 3 her medical mysteries began and thrust her into the devastating world of Batten's Disease which is a rare neurological disease that has robbed Maayan of her vision, all her muscle use and mobility, with epilepsy and severe lung disease included. Sadly her life is filled with machines, medications, seizures in daily life, or death episodes which require her to have 24 HOUR monitoring.
Even so, Maayan shines her Chanukah light and emunah into this world, as she has inspires 1000's to grow in emuna! Ain od Milvado!
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